Tuesday 04.03.2014 - Diagnosis

I've got no funny comments today. Two ladies come to see me, an important looking one and a kind looking one. Important tells me I have Arrhythmogenic right ventricular cardiomyopathy (ARVC). This is what has been causing my VT. The disease is progressive, there is no cure and I won't get better. I'll need to get a defibrillator (ICD) implanted and then monitor and manage the symptoms for the rest of my life. Hard exercise is a big No, it literally shakes my heart cells apart. Kind tells me what it will mean and gives me something to read. Rich arrives. I cry. I know it sounds funny, but even after a week being tested and monitored in a cardiac ward, I didn't really expect that there was anything wrong with me. Certainly not anything like this. My Sisters, mum and dad, and my little son will need to get tested, the disease is congenital. Have to call them all and tell them. I wish I could hug my little boy.